External Links

Further reading on Smith-Magnenis syndrome and living with disability can be found on some of these websites.

A Wikipedia extract on Smith-Magenis syndrome.

Wikipedia website

Other SMS Organisations

 Prisms websitePRISMS Website

Parents and Researchers interested in Smith-Magenis syndrome.




Association SmithMagenis

French national Smith-Magenis website.




Research Organisations

Genetic Home Reference


Office of Rare Diseases Research (ORDR)

 Behaviour and Learning Support

BILD (British Institute of Learning Disabilities)





The Challenging Behaviour Foundation





Family Support

Contact a Family





Sibs (for brothers and sisters of disabled children and adults)


Additional information