Following on from the SMS Foundation conference in June this year, please find available a selection of the presentations to download. More will be published as and when they become available from the conference speakers.

Understanding Behaviour in Smith-Magenis Syndrome

Chris Oliver is Professor of Neurodevelopmental Disorders and Director of the Cerebra Centre for Neurodevelopmental Disorders. His main research interests are behavioural, cognitive and emotional disorders in people with severe intellectual disability, genetic syndromes and autism spectrum conditions. Chris is also a member of our Professional Board and a regular at SMS conferences.

Lucy Wilde is a Research Fellow at the Cerebra Centre, her PhD research examined social behaviour and impulsivity in SMS. They will be discussing the psychology of behavioural issues, and the latest research that may be of interest.

Understanding Behaviour in Smith-Magenis Syndrome


SMS Foundation AGM

 AGM Presentation (as presented at the 2013 AGM)



Minutes from 2013 AGM


Introduction and Overview of Genetics by Dr Alison Male

Dr Alison Male is a consultant in Clinical Genetics at Great Ormond Street Hospital, London. As a clinician she is involved in diagnosing genetic syndromes and arranging appropriate testing. She also provides information to patients and families about their genetic syndrome in a way that enables them to understand as much of their condition as possible. She is a member of the SMS professional board.


Smith-Magenis Syndrome


An overview of the Challenging Behaviour Foundation and how we support families

Vivien Cooper the founder of the Challenging Behaviour Foundation (CBF) will be presenting on the CBF charity and how they can help.

In 1997, Viv founded the charity, the Challenging Behaviour Foundation (CBF). This is a small but national charity that provides a range of information and support to families of children and adults who have severe learning disabilities and behaviour described as challenging. In addition to developing family friendly, practical information and resources, the CBF works strategically to deliver
change and has established a Challenging Behaviour National Strategy Group, made up of senior stakeholders, which has agreed a charter to improve support and services.

Viv participates in a range of groups and networks, at a local, regional and national level. In 2012 she was awarded an OBE for her work. More information is available at

 The Challenging Behaviour Foundation


Additional information