The Smith-Magenis Syndrome (SMS) Foundation is a small UK registered charity that supports families, who have children of all ages, with Smith-Magenis Syndrome and provides information for professionals working with these families.

This support comes in many different forms;

  • Providing information about SMS
  • Passing questions on to our board of professionals
  • Putting you in contact with other families close to you
  • Being there to listen, talk and share stories

As a charity we can offer literature, up to date research information and direct you to professionals experienced with Smith-Magenis Syndrome.We help to organise informal get togethers so you can meet other families.


We also organise bi-annual conferences, where there are presentations from world wide experts in Smith-Magenis syndrome and the opportunity to talk to other parents about the many different aspects of life with Smith-Magenis Syndrome.


If you join as a member you will receive quarterly newsletters, a membership pack with useful literature, updates of any social meetings or conferences and be kept up to date with any fundraising events that are going on!